ME Research UK

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Informing, influencing and investing in ME research globally

Perth, Scotland · United Kingdom Reg SC036942 (Charity Commission) Health
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90 / 100
Integrity score
Strong transparency

About

To fundraise for and to fund biomedical research into the causes, consequences and treatments for ME/CFS. Charity provides information on research findings as well as information on the disease and the importance of research. The aims are achieved by providing research grants and provision of information via social media and print. 'the advancement of education','the advancement of health','the advancement of the arts, heritage, culture or science' To advance scientific knowledge by commissioning or funding research into the causes, consequences and treatment of Myalgic Encephalomyeli­tis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and to publish or cause to be published the results of any such research. To advance public education and awareness of the causes, consequences and treatment of Myalgic …

Mission

Energising ME Research

Founder story

The charity was established in 2000 by Dr Vance Spence and Robert McRae, and thanks to the impetus and financial backing of Founding Patron, Roger Jefcoate DL CBE. Vance and Bob were diagnosed with ME/CFS in the 1980s and 1990s, …

The charity was established in 2000 by Dr Vance Spence and Robert McRae, and thanks to the impetus and financial backing of Founding Patron, Roger Jefcoate DL CBE. Vance and Bob were diagnosed with ME/CFS in the 1980s and 1990s, respectively, and both shared a vision and desire to ensure that more research into the illness, which so affected their lives, could be carried out and the results better understood. From the outset, each brought their own professionalism to the fledgling charity and their legacy imbues our work today.

Programs

2 programs run by ME Research UK
  • Blood-based biomarkers to aid ME/CFS diagnosis

    Developing an accurate and reliable diagnostic test for ME/CFS is one of the holy grails of research into this disease, and was identified as a priority by the ME/CFS Priority Setting Partnership in 2022. A team of interdisciplinary researchers led by Prof. Chris Ponting at the University of Edinburgh believe a promising diagnostic approach may be to measure the levels of different proteins in the blood, which can be done accurately and cheaply.

  • Understanding the mechanism and role of autoimmunity in ME/CFS

    Our immune system is responsible for protecting our body from infections such as viruses and bacteria, recognising and destroying harmful substances from the environment, and combating changes in the body that can cause disease. The role of the immune system in the development of ME/CFS has been widely researched, and several studies funded by ME Research UK have explored various aspects of abnormal immune function in the illness.

Focus & reach

Category
Operating in
United Kingdom flagUnited Kingdom
Causes

Verification & registration

Every mark links to the official registry entry and opens in a new tab.

Charity Commission
Government register · SC036942
On record

Integrity assessment

A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →

Registration 20/20
Government registration ID on record +8
Sourced from official registry +4
Cross-referenced (2+ sources) +4
Claimed and verified by organization +4
Financial Transparency 24/30
No financial documents found on website 0
Financial filing on record +8
Revenue figure disclosed +6
Spending figure disclosed +6
Detailed financial breakdown disclosed +4
Governance 16/20
At least 1 officer disclosed +5
3+ officers disclosed +3
Officer titles disclosed +2
Executive compensation not disclosed 0
Mission / description on file +3
Founding date on file +3
Contact Availability 10/10
Website +3
Email +3
Phone +2
Physical address +2
Data Recency 20/20
Updated within 6 months +20
Red flags 0
No red flags detected, so nothing is deducted 0

Financials

OSCR (Scottish Charity Regulator)
Annual revenue
£877,131
Reporting year
2025
To programmes
94%
See 5 years of financials
Revenue history, expense breakdowns, and balance sheet, free with an account.
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Leadership at a glance

Charity-submitted
EL
Eleanor R••••••••
Trustee
FA
Faisel K••••••••
Trustee
JA
Jan M••••••••
Secretary
JO
Joe W••••••••
Trustee
GiveRadarGiveRadar Intelligence

GiveRadar Analysis

Based on the records currently verified by GiveRadar, ME Research UK has a complete profile, cross-referenced across 3 independent sources including OSCR.

  • This profile is owner-verified, which only 0% of comparable charities are. See national comparisons
  • It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, a mission statement and a founding date. See national comparisons
  • Its integrity score of 90 places it in the top 1% of the 26,075 health charities in the United Kingdom GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
GiveRadar has verified
  • government registration
  • financial records (5 filed years)
  • disclosed leadership
  • a website
  • a contact email
  • a donation page

Analysis based on GiveRadar's benchmark dataset of 2026-10-19. It describes what GiveRadar has verified, not a judgment of the organization itself.

Annual revenue
£877,131
94% to programs. Figures from OSCR (Scottish Charity Regulator).
See 5 years of financials

Filing history

5 years on file from OSCR (Scottish Charity Regulator): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: 2025, 2024, 2023, 2022, 2021.
Financial details are free with a GiveRadar account

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Tax deductibility

Whether a gift to ME Research UK lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.

Sometimes deductible

Donations may be tax-deductible for residents of United Kingdom under local rules. Confirm with the charity directly.

This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.

Staff & volunteers

From filings and published profiles
Employees
6

Leadership & board

Charity-submitted

Board members and senior officers on record, with disclosed pay where available.

See full names, roles, and stories

6 officers and trustees on file, free with a GiveRadar account.

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No red flags detected

Screened for the risks donors care about.
Charity Commission removal None found
Open investigations None found
Governance scandals None found
Related-party deals None found
Excessive exec comp None found

Timeline

From official filings

Key dates from this charity's official filings, newest first.

FY2025
Form filed
£0.9M revenue, OSCR (Scottish Charity Regulator)
FY2024
Form filed
£0.4M revenue, OSCR (Scottish Charity Regulator)
FY2023
Form filed
£0.5M revenue, OSCR (Scottish Charity Regulator)
FY2022
Form filed
£0.8M revenue, OSCR (Scottish Charity Regulator)
FY2021
Form filed
£0.6M revenue, OSCR (Scottish Charity Regulator)

In the news

From public news

No recent news coverage found

News coverage will appear here when articles mention this organization.

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Where it ranks

Top 1% of 26,075 health charities in the United Kingdom on integrity score

The highest integrity score in this cohort (90/100). Positions are competition ranks: ties share a position. Cohorts are the tightest local peer set with at least 30 comparable organizations; a metric is left out where the cohort is too small or nearly uniform.

Integrity score90/100
Top 1% of 26,075
Governance disclosure3/5
#2 of 203,201 tie
Contact completeness10/10
#1 of 26,075 tie
Data freshness20/20
#1 of 26,075 tie
Data coverage80%
Top 1% of 26,087
Independent sources4 sources
#6,553 of 26,087 tie
Filing history depth5 years
#168 of 20,271 tie
Agefounded 2000
#8,674 of 26,087 tie
Revenue size$100K to $1M
#2,049 of 22,458 tie

Bars show the share of the cohort this charity outranks. Ranks describe how much is publicly disclosed, not how good the charity is.

How it stacks up against peers

Compared with 8 similar health charities in United Kingdom.

Program spending Ahead of peers
This charity
94% Peer average
87%
Integrity Assessment Ahead of peers
This charity
90 Peer average
81

Cause areas in United Kingdom

Charities working in each area, this charity's highlighted.

Education
71,275
Health
26,180
Religion
24,721
Arts & Culture
24,490
Community Development
16,834
Social Services
9,089
Environment
6,166
Youth Development
4,663
See all cause areas

Sources and verification

Registration and legal identity
Office of the Scottish Charity Regulator (OSCR) - Scottish Charity Register
Financial filings
OSCR annual returns (Scottish Charity Register) · Fiscal year 2025 most recent on file.
Officers and trustees
Submitted by the organisation · 6 submitted by the organisation.
News and media coverage
GDELT Project + Google News

What we know and don't know

Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.

Financial data
Named leadership
Government registration
Mission statement
Programs & activities
Official website
Headquarters address
Direct contact
Tax-deductibility
Founding date
Executive pay

Data freshness

How current this profile is, and when we last checked it against the official source.

Last updated
October 22, 2026
Profile edits and newly added data
Registry checked
September 2, 2026
Reconciled with the official source
Latest financials
Financial year 2025
Most recent filing on record
Profile completeness
85%
Data points we track that are filled in

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology
FAQ

Frequently asked questions about ME Research UK

ME Research UK is a registered health nonprofit based in Perth, Scotland, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2000 and has been operating for 26 years. Its registration number is SC036942. GiveRadar's Integrity Assessment for the organization is 90/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £877K in annual revenue. 6 officers and directors are publicly disclosed. No red flags have been detected.

Based on official filings, ME Research UK has £877K in annual revenue. It allocates 94% of expenses to programs and services. This is above the average of 87% for health charities in United Kingdom. Fundraising costs represent 6%. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

To fundraise for and to fund biomedical research into the causes, consequences and treatments for ME/CFS. Charity provides information on research findings as well as information on the disease and the importance of research. The aims are achieved by providing research grants and provision of information via social media and print. 'the advancement of education','the advancement of health','the advancement of the arts, heritage, culture or science' To advance scientific knowledge by commissioning or funding research into the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and to publish or cause to be published the results of any such research. To advance public education... ME Research UK is classified as a health organization registered in United Kingdom. The organization was founded in 2000.

ME Research UK is classified as a Health organization, registered in United Kingdom. It operates as a SCIO. It has £877K in annual revenue. The organization has 6 disclosed officers and directors.

ME Research UK's official registration number is SC036942, as recorded in the national registry of United Kingdom.

ME Research UK is located in Perth, Scotland, United Kingdom. The organization was established in 2000 and has been active for 26 years.

ME Research UK is based in Perth in Scotland. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.

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Quick facts about ME Research UK

What is ME Research UK?
ME Research UK is a health scio based in Perth, United Kingdom. To fundraise for and to fund biomedical research into the causes, consequences and treatments for ME/CFS. Charity provides information on research findings as well as information on the disease and the importance of research. The aims are achieved by providing research grants and provision of information via social media and print. 'the advancement of education','the advancement of health','the advancement of the arts, heritage, culture or science' To advance scientific knowledge by commissioning or funding research into the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and to publish or cause to be published the results of any such research. To advance public education and awareness of the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and of the need for research into the condition, by producing printed or electronic information, funding or hosting scientific meetings, and acting as a key information resource for researchers, medical practitioners, healthcare professionals and the general public.
When was ME Research UK founded?
ME Research UK was founded in 2000.
Where is ME Research UK located?
Headquartered in Perth, Scotland, United Kingdom.
What is ME Research UK's annual budget?
Annual revenue for fiscal year 2025 is £877,131. 94% of expenses go to program services.
Is ME Research UK trustworthy?
ME Research UK has a GiveRadar Integrity Assessment of 90 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is ME Research UK's registration number?
Registration: SC036942 (United Kingdom).
What is ME Research UK's website?
https://www.meresearch.org.uk
Are donations to ME Research UK tax-deductible?
Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.