The Tuberous Sclerosis Association
About
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Focus & reach
Verification & registration
Every mark links to the official registry entry and opens in a new tab.
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Financials
Charity Commission (UK)Leadership at a glance
Official filingsSimilar charities
GiveRadar Intelligence
GiveRadar Analysis
From what GiveRadar has verified so far, The Tuberous Sclerosis Association has a substantially complete profile, sourced from the Charity Commission.
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2024. See the filings
- Its integrity score of 76 places it in the top 25% of the 87,708 education charities in the United Kingdom GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
5 years on file from Charity Commission (UK): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTax deductibility
Whether a gift to The Tuberous Sclerosis Association lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
UK donations qualify for Gift Aid. THE TUBEROUS SCLEROSIS ASSOCIATION is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
THE TUBEROUS SCLEROSIS ASSOCIATION is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
THE TUBEROUS SCLEROSIS ASSOCIATION is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
7 officers and trustees on file, free with a GiveRadar account.
No red flags detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
News coverage will appear here when articles mention this organization.
How it stacks up against peers
Compared with 8 similar education charities in United Kingdom.
Cause areas in United Kingdom
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities · 7 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyIf you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.
Frequently asked questions about The Tuberous Sclerosis Association
The Tuberous Sclerosis Association is a registered education nonprofit based in Exeter, England, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 1994 and has been operating for 32 years. According to GiveRadar's records, it holds registration with the UK Fundraising Regulator, which means it has committed to the Code of Fundraising Practice and accountable fundraising standards. GiveRadar's Integrity Assessment for the organization is 76/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £657K in annual revenue. 7 officers and directors are publicly disclosed. No red flags have been detected.
Based on official filings, The Tuberous Sclerosis Association has £657K in annual revenue. It allocates 67% of expenses to programs and services. This is below the average of 98% for education charities in United Kingdom. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC. The Tuberous Sclerosis Association is classified as an education organization registered in United Kingdom. The organization was founded in 1994.
The Tuberous Sclerosis Association is a charitable company limited by guarantee, the most common incorporated form for UK charities. It is registered with both Companies House and the Charity Commission, and must file annual accounts with both regulators. Directors (who are also charity trustees) have limited liability.
The Tuberous Sclerosis Association's registered charity number is 1039549. You can use it to look up the organization on the Charity Commission register.
The Tuberous Sclerosis Association is located in Exeter, England, United Kingdom. The organization was established in 1994 and has been active for 32 years.
The Tuberous Sclerosis Association is based in Exeter in England. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
Check any charity before you give
Search 7.9M+ nonprofits across 100+ countries. Free, and no account needed.
Report an issue
Tell us what's wrong with this charity's page. We review every report and typically reply within 2 business days.
Report sent
Thanks for flagging this. Our team will review it.
Press Esc to close
Save The Tuberous Sclerosis Association?Download this profile as a PDFVisit The Tuberous Sclerosis Association's websiteLog a donation to The Tuberous Sclerosis Association
Create a free GiveRadar account to save charities and track them in your dashboard.Create a free GiveRadar account to download charity profiles as a clean PDF.Create a free GiveRadar account to open charity websites and keep your research in one place.Create a free GiveRadar account to record donations and track your giving over time.
Quick facts about The Tuberous Sclerosis Association
- What is The Tuberous Sclerosis Association?
- The Tuberous Sclerosis Association is a education charitable company based in Exeter, United Kingdom. The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
- When was The Tuberous Sclerosis Association founded?
- The Tuberous Sclerosis Association was founded in 1994.
- Where is The Tuberous Sclerosis Association located?
- Headquartered in Exeter, England, United Kingdom.
- What is The Tuberous Sclerosis Association's annual budget?
- Annual revenue for fiscal year 2024 is £656,551. 67% of expenses go to program services.
- Is The Tuberous Sclerosis Association trustworthy?
- The Tuberous Sclerosis Association has a GiveRadar Integrity Assessment of 76 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is The Tuberous Sclerosis Association's website?
- https://www.tuberous-sclerosis.org
- Are donations to The Tuberous Sclerosis Association tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.